The spoon theory came
about years ago by a woman called Christine who suffers from Lupus. She
started this theory to explain to a friend how it is like to deal with chronic
illnesses on a daily basis. Christine grabbed a handful of spoons and used the
spoons to represent our energy. She had grabbed 12 spoons for someone who has
chronic illnesses. Anyone without any illnesses have plenty of spoons like
hundreds and thousands of spoons.
For every task we do
every day requires energy so each task uses a spoon. So Christine explained to
her friend what she done on an average day and took a spoon away. When all the
spoons are gone the only way of requiring more spoons is resting and waiting to
regenerate more spoons. Due to this anyone with chronic illnesses will ration
their spoons throughout the day. Most people do not have time to rest in the middle
of the day so we have to ration them throughout the day instead of using them
all up in the morning as no spoons means no energy. On the other hand if
someone without a chronic illness were to go hard in the morning they might be
a bit tired or they might be fine. In most cases they are able to continue with
the rest of their day because they have plenty of spoons to get through the
day. They might need some extra coffee but life is still able to carry on. Like
Christine I am careful with my spoons and try not to waste them as I have
limited spoons some more than others as I have issues with sleeping.
Well this is the spoon
theory a concept developed my Christine Misbranding and referenced to by many
people who suffer from chronic or invisible illnesses. Many people living with
conditions such fibromyalgia, Crohn’s disease, anxiety and depression.
Living with chronic
illnesses can be deceiving as we can appear “fine” as we often do not display
easily spotted physical symptoms. It can be tough for everyone involved with
that person like friends, family and colleagues to understand why they bail out
on happy hour or cannot drive long distances for visiting or take a lot of sick
days.
I suffer from backache,
joint pains and abdominal pain. They are triggered by several things like
stress, weather changes, not taking a proper rest or an illness flaring up like
my fibromyalgia, Crohn’s disease or my IBS.
Many days I try to
operate with minor pains in my back or joints and I have to take paracetamol or
over the counter codeine and hope the pain goes away. Other days the pain is
worse and the pain medication does not work so I have to hope lying down on the
sofa or in bed works.
As a full time mum and
also working full time with no friends or family that lives on my doorstep to
help out as it is just myself and Alisha now in the house it does disrupt life
for both of us. The days I am in pain and need to go places we need to leave
earlier as I cannot walk fast like I normally do. The housework gets threw on
the back burner as I have no energy to do it myself. I might not be able to
take Alisha places even if I make a promise to her that we are going somewhere
like the cinema. The television ends up being our friend and that is where we
stay unless I need to get up and make us food. There are days I will not be
able to do much but lie on the sofa and rest. Because of this I must pace
myself throughout the day. If I try to do too many things I run out of energy
and I have to rest up.
At home my work load
piles up while I am sick. I get the basics done around the house. The laundry I
hate with a passion so I literally get it washed and dried but it usually never
gets folded unless I have visitors coming or ironed if I really need to get it
ironed.
I may not look sick but
I do have varying levels of dishevelled at times because of a 3 year old, so it
is nothing too out of ordinary there. To everyone, people who suffer with
chronic and invisible illnesses can appear fine and it can be very hard to understand
why we cancel plans or why they always complaining about being tired. The spoon
theory which Christine put together to explain to her friend provides everyone
a context to share with people in our lives so that they have a much clearer
picture of what we have to deal with on a daily basis.
No comments:
Post a Comment